Wednesday, June 27, 2012

    Well, chemo has been delayed again due to her blood counts.  While her platelet count increased, her ANC declined.  At this point, she is considered to be neutropenic.  This means she needs to stay away from anyone who is or has been sick.  If she begins to run a temperature we have to go to the ER.  I am praying she does not run fever.  She and I both hate having to go there.  Other than that, Zoë is enjoying her summer. 
    We were glad to be able to see Alex for a day before he went to Youth for the Nations camp in Dallas.  He will be back on Friday.  Oh, how we have missed him!
    Zoë is excited about all of the July 4th events going on this weekend.  Friday Zoë has a small ceremony at the pole barn by the park in Ore City.  She will be escorted by her Papaw Tim and will get to wear her "poofy" dress.  Then, Saturday morning she will get to ride in the parade in Ore City.  She cannot wait to ride with Uncle Darrell in his barbie car.  (We love you Uncle D!!) 

Chemo pics!

Thought I would share a few pics. :)

Wednesday, June 13, 2012

Wonderful things happening

Wonderful things are happening for Zoë!  She has been doing VERY well with her treatment.  Her tumor is well on half the size it was when she began treatment over one year ago.  Her next MRI is scheduled for August.  There was some concern about her blood counts (specifically her ANC or Absolute Neutrophil Count) and her doctor decided to replace the antibiotic she was taking three times a week to an antibiotic breathing treatment that is taken once a month at the hospital.  She does not like the way it smells but is happy not to have to take her "nasty, purple" medicine anymore.  She recently visited Dr. Hogan, a pediactric neuro-opthamologist.  We were concerned her chemo was beginning to affect her vision but she tested 20/25 in her right eye and 20/15 in her left!  Zoë was little disappointed that she didn't need glasses but I was happy her vision has not been affected.    She will continue her treatment until the end of September or beginning of October.  Hopefully, she will not have to push back too many more treatments due to low blood counts.  Zoë is happy to be out of school for the summer but crazy excited about 1st grade!  Alex and I are looking forward to the fall as well and all of the changes it will bring.  Until next time....(I promise to update this blog before next summer!)