Sunday, April 24, 2011
Upon our discharge from the hospital Thursday night, we were given a short summary of events and what was found. I have copied this summary and posted it below. Zoë was admitted from the Children’s Mercy Hospital Neurology Clinic for right sided weakness. An MRI of her brain was obtained which showed a brain tumor originating from her optic nerve. We consulted several of our subspecialists, including Neurosurgery, Hematology/Oncology, Endocrinology, and Ophthalmology. Neurosurgery felt that no surgical intervention was warranted at this time. Endocrinology asked for several labs to evaluate for hormonal abnormalities that can be seen with this type of tumor. This workup was negative. Ophthalmology performed a dilated eye exam and found no abnormalities. We tested for neurofibromatosis which is a genetic condition that can have optic glioma as a finding. These results will not return for about 6-8 weeks. An MRI of her spine was obtained and was normal. Zoe did not have any neurologic problems during her admission, and had no signs of increased pressure in her skull. She did not require any medications. Zoë will have several follow up appointments in the near future. She will see her oncologist, Dr. August, on Friday. After our consultation with him, we will have a more definite answer on when she will be fitted with a semi permanent iv and when she will begin chemotherapy.
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