What we know.

As most family members may know, Zoë’s right hand has been getting weaker over the past year.  At first we thought this may be due to her being extremely left handed (as Zoë seems to take everything to a level of her own.)  Recently though, we have found out that this problem was due to a large mass growing in her brain.  The doctors gave her an early diagnosis of “Optic Nerve Glioma.”  We have recently found out that the first diagnosis could possibly be incorrect.  As far as we know, there is not any family history to suggest Optic Nerve Glioma, and Zoë is not showing the common signs that would help support the first diagnosis.  What we are left with is  some other form of tumor that may need to be treated differently.  A standard Optic Nerve Glioma would be treated with radiation and chemotherapy, as trying to remove the tumor could cause permanent loss of sight in the affected eye.  Due to the uncertainty, Zoë will have to undergo surgery to have a biopsy done on the tumor.  With this information the doctors will get a better idea of what they are dealing with and how to further Zoë’s treatment. 

Currently, Zoë is feeling fine and entertaining the hospital staff in her special Zoë way.  Kasi and I will try to keep this blog updated with any new information about Zoë.  We appreciate all the prayers and kind wishes.